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Posts Tagged ‘vaccine advocacy’

How One Teen is Engaging Her Peers to Help Eliminate HPV Related Cancers

February 27, 2018 1 comment

By Allyson Rosenblum

What if you could save a life or prevent someone from the devastation of cancer simply be providing them with information, would you do it?  What if it was someone you knew or cared about, would you do it then? 

IMG_3767 6.17.55 PMMy name is Allyson and I am a 17 year-old high school student living in Southern California. Earlier this year, I set out to do something that I hope will make a difference in the lives of others. I would like to encourage teenagers who care about their health and the health of future generations to join me.

What I’m asking is fairly simple. I am requesting high school and college students to pass along valuable information about HPV infection and prevention to those they know and care about.  

I have personally seen HPV and cancer devastate the lives and dreams of people I love. Beginning in October of last year, I witnessed my mother’s difficult battle with cancer every day as she endured three surgeries and eight months of chemotherapy. Two months later, my cousin informed me that she was diagnosed with cervical cancer resulting from an HPV infection she acquired as a teenager. At just 35 years old, she has now had to accept the fact she will never be able to have biological children of her own. Seeing all this pain and needless suffering has moved me to take action.

I decided to start a social media campaign on Facebook and Instagram, which I called “Two Shots To Beat Cancer.”

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My goal is to enlist high school and college students throughout the U.S. to help in passing along information about the importance of early HPV vaccination to other high school and college students using various social media platforms.

Let me emphasize that this campaign is not about teen sex.  Rather, it’s about prevention of HPV prior to sexual activity. If people can avoid acquiring the strains of the HPV virus that are linked to cancer, they will be less likely to suffer with an HPV related cancer later in life or pass the virus on to others.  This is why the CDC recommends the HPV vaccine to 11-12 year olds. However, if a child did not get vaccinated in their pre-teens, it’s not too late. The vaccine is recommended up to age 26 for women and age 21 for men.

Unfortunately, most people my age do not want to talk about health related issues. We’re often uncomfortable talking about such topics, especially with adults, and reticent to share private information about ourselves. As such, many of us remain unaware of the dangers and prevalence of HPV, and questions and concerns often go unaddressed. However, it is precisely the lack of education and informed knowledge that allows the HPV epidemic to persist. By sharing timely and credible information among peers, I hope to empower my generation to take responsibility for their health and to help encourage better health practices among our peers.

I started this campaign in January and through the power of social media have already been able to get 1807 high school and college students to join me in all 50 states. With an average of 600 followers per student, that gives us the potential of reaching 1,084,200 students and counting!  However, I’m not content with that. I believe we can do far better! In fact, if high school and college students were aware that there are 14 million new people acquiring HPV in the U.S. each year and over 50% of them are teens and young adults who are just becoming sexually active, than I believe they may see their important role in this mission.

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I would encourage any high school or college student who cares about their own health, or the health of future generations, to find out more by visiting my website at TwoShotsToBeatCancer.org and joining the Two Shots To Beat Cancer Facebook Page and following our Two Shots To Beat Cancer Instagram account.

By joining me in this worthwhile endeavor, we can be the generation that puts an end to HPV related cancers. By posting to social media and sending letters to politicians, newspapers and school board administrators, we can make a difference and help to stop the spread of HPV. It takes little time, costs no money and by encouraging students to engage in important and life-changing conversations, we can save lives and prevent needless suffering.

Impact of Latest Congressional Actions on Immunization Programs

December 12, 2017 Leave a comment
By Erica DeWald, Director of Advocacy, Every Child By Two/Vaccinate Your Family

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As we near the end of 2017, we want to extend a big thanks to each of you! Without your support for immunizations, our voice would not be heard in Washington. Only through regular outreach to our lawmakers have we been able to demonstrate the impact federal policies would have on vaccination rates and thus our country’s health.

Unfortunately, our work for the year isn’t over yet. We are still closely monitoring the appropriations process as well as the reauthorization of the Children’s Health Program (CHIP), which provides health coverage for 8.9 million children who are uninsured.

Congress has twice extended the deadline for an FY18 spending bill. The next Continuing Resolution (CR) expires December 22. A new proposal from House Appropriations Chairman Frelinghuysen would extend funding for all non-defense spending through January 19 and reauthorize the CHIP funding for five-years. Unfortunately, the proposal also includes $6.35 billion in cuts to the Prevention and Public Health Fund (PPHF). As a reminder, PPHF accounts for 53% of the Immunization Program’s funding.

The Immunization Program’s non-PPHF funding also remains in jeopardy. The Senate has proposed level funding from FY17 for the Centers for Disease Control and Prevention’s Immunization Program (which received a 4 million dollar cut last year), while the House has proposed a 50 million dollar cut. That large of a cut would devastate immunization infrastructure. 

Both CHIP and the Immunization Program enjoy bipartisan support but Congress has had difficulty understanding how their funding choices affect our nation’s health. If fewer children are able to access health care through CHIP – either because Congress is delaying reauthorization or because they have instituted new demands that states match funds – then less children will end up receiving life-saving vaccines. Second, if Congress uses Prevention & Public Health Fund (PPHF) dollars to help pay for CHIP as proposed in the House bill, they are in fact cutting essential funds from the very public health clinics and immunization programs that accept CHIP and provide care to children.

Please consider calling your Representative and Senators to urge them to support ALL public health funding. Ask them to reauthorize CHIP without using the PPHF as a budgetary offset. You can find contact information for your legislators at whoismyrepresentative.com.

Every Child By Two/Vaccinate Your Family will continue to watch these legislative issues and do our best to keep you informed.   

Thank you again for your interest and support!

Federal & State Legislators are Listening: Time To Advocate For the Value of Vaccines

March 23, 2017 11 comments

There has clearly been a political awakening in this country and people are once again motivated to make their voices heard in regard to political policies.  When it comes to protecting our nation’s health and maintaining our personal freedoms, there are plenty of differences in opinion.

In a recent VaxTalk podcast hosted by Voices for VaccinesEvery Child By Two Board Member Sarah Depres and Immunize Texas member Jinny Su, discuss the potential impact proposed federal and state policies could have on the health of our nation and our local communities.  More importantly, they explain how everyday citizens are being encouraged to actively engage with their legislators on these issues. 

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Federal Policies and Their Impact on the Prevention of Disease

To start, Ms. Depres explains how the American Healthcare Act and the President’s proposed budget may impact the availability, accessibility and affordability of immunization services across the country. While these policies are still evolving, she comments that the proposed plans suggest significant budget cuts will be made to the U.S. Department of Health and Human Services (HHS) and the Centers for Disease Control and Prevention (CDC).  These two federal agencies are currently responsible for the majority of federal immunization programs and vaccine oversight.  A reduction in their operating budgets will likely have a significant and fairly immediate impact on things such as vaccine safety and oversight, disease surveillance, outbreak response, scientific evaluation of effective immunization practices and research that helps us to understand what interventions work to improve vaccination rates across the U.S..

While some may argue that we can save money by streamlining budgets and consolidating programs, there is a larger concern that must be addressed and it has to do with state level immunization programs.  The fact is that the collective work of these agencies has a direct impact on individual state efforts to provide good immunization services to the public. Not only do states benefit from the large-scale research and oversight that the federal government conducts on vaccines, but a large portion of these federal funds trickle down to assist states in their specific efforts to prevent outbreaks that can easily cross state lines.  As Ms. Depres explains, infectious diseases have no borders and it is therefore unrealistic and, quite frankly, unacceptable, to put the bulk of responsibility on the states when they are not in the same position that the federal government is to fund large scale programs that we know benefit the country and its citizens as a whole.

SOTI-VPDCostIGTake the state of Nevada as an example.  Nevada continues to rank at the bottom of the list for public health spending with just $4.10 per capita and they also happen to be a state with some of the lowest immunization rates in the U.S. In comparison, Idaho, their neighbor to the northeast, spends as much as $94.70 per capita. When The Affordable Care Act was established, it included the Prevention and Public Health Fund (PPHF) to sustain and expand preventive health measures and save the country money typically spend on illness and disease.  Fortunately, this fund has supplemented Nevada’s budget with more than $31 million since the fund’s inception, and has had a direct impact on the programs being developed to ensure vaccine access across the state.  Unfortunately, with the repeal of the ACA, the PPHF funds are at risk of being eliminated, and Nevada will likely suffer major public health setbacks as a result.

A Surge in State Specific Immunization Related Bills

Read more…

How Fake Vaccine News Is Dangerous to Us All

February 9, 2017 2 comments

Fake news is nothing new to vaccine advocates.

Happy senior asian couple working with laptopFor years we’ve been countering vaccine misinformation from a large number of sites such as Mercola, Natural News, Age of Autism and dozens of others.  They each have their own way of claiming that vaccine risks outweigh their benefits, despite the overwhelming scientific evidence from experts around the world that says otherwise.

Despite the fact that these sites fail to provide evidence to back up their false claims, the misinformation they routinely publish is widely circulated on social media and it’s likely that their efforts can contribute to the doubts that some Americans have about the safety and efficacy of today’s vaccines.

This is why day after day, and year after year, countless organizations like Every Child By Two, work hard to provide the public with evidence-based information about vaccines through informative websites like Vaccinate Your Family, and social media accounts like the Vaccinate Your Family Facebook page and @ShotofPrev Twitter account.

But this week, fake vaccine news has entered an entirely new realm and it is rather concerning.

Yesterday I woke to such headlines as, ‘Trump Orders CDC to Remove all Vaccination Related Information from Website’ and ‘President Trump Signed an Executive Order Banning Childhood Vaccinations for 90 Days’.

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These, and other outrageous stories that are circulating on the internet, signal a new level of hysteria that is dangerous for us all.

While it is comforting to know that these articles were irresponsibly inaccurate, I’m still left questioning the motives and intent behind these headlines.  What were the the authors’ and publishers’ hoping to achieve?  Read more…

A Physician’s Plea to Those Who Don’t Vaccinate

July 14, 2016 14 comments

What value do vaccines have in your life?

Throughout July and August, Shot of Prevention is encouraging people to address this question.  Today’s guest post, by clinical cardiologist Dharmaraj Karthikesan, provides a personal perspective from someone who is genuinely concerned about the health and well-being of people who choose not to vaccinate themselves or their children.  

Photo Of RajHere’s what Dr. Karthikesan has to say:

I’ve heard people say that deaths from preventable diseases are the will of God.  Indeed all men must die, but not all have to die stupid.  I believe ignorance is deadly.  Sadly, it can also be contagious.

My issue resides with people who are opposed to vaccination and recently this issue became very personal. 

See, I have a new nephew in the family.  He lives in another country and so I only get to see him on Skype.  However, his parents were considering a visit and I was really looking forward to seeing him.   But due to the outbreak of diphtheria in Malaysia, where I live, I advised his parents to postpone their visit.  See my nephew hasn’t completed his vaccination schedule and I feared for his health.

My fears are not unfounded. This is the reality we are living in; where our lives are dictated by the decision of others. And every decision not to vaccinate affects the health of others in our community and in our world.

As a doctor, I try to appeal to people’s sense and reason when they tell me that they have decided against vaccinating.  Sometimes that communication fails and so I’ve decided to try to employ one other method.

Instinct.

I ask,

Do you instinctively feel that your child is safe without vaccination? 

Do you instinctively feel secure knowing that your child will recover regardless of the infectious disease that they may contract?

Do you instinctively feel impervious to all manner of infectious disease, even those which are airborne, just because you eat a certain diet or take certain homeopathic remedies?  

If it is difficult to honestly answer these questions affirmatively, then I beg you to consider what I have to say. 

Vaccines are safe.

I state the obvious first. I understand and empathize with those who feel that vaccines are dangerous and those who believe vaccines can be harmful or detrimental to health. Let’s assume that this is true. For a moment, let’s assume they are worse than death, or worse than the defects and disabilities they cause.

Let’s start with polio, which can cause disability and even suffocation if it involves the breathing muscles. Assuming your child recovers from polio, he may never run or play like a normal child. Are you prepared to accept that?

How about diphtheria, which affects your child’s breathing. In severe forms, it can affect the heart and nerves leading to death. Are you willing to take that chance? 

Now how about pertussis, which is known to cause violent, uncontrollable coughing making it extremely difficult for a child to get air into their lungs.  About half of babies who get pertussis need care in the hospital, and 1 out of 100 babies will die.  Is this the kind of suffering you want for your child?

There are serious dangers with all vaccine preventable diseases.  However, vaccines work to prevent infection by developing an immunity that imitates the infection.  This imitation spares one from suffering with severe illness.   Instead, vaccination allows the immune system to develop an arsenal of weapons in the form of’ ‘antibodies’. If your child should ever be exposed to these infections in the future, these antibodies will prevent the infection from spreading to your child by eliminating the threat early and preventing your child from getting sick. It’s quite simple actually.  Once the body knows the ‘enemy’, it is better able to defeat it.

So the question that begs for an answer is this;

Do you want your child to be facing these diseases alone, or do you want a strong arsenal of vaccines helping to form a protective shield?

The choice is yours.  But that’s the problem actually.  Vaccines are a choice and people’s choices are sometimes influenced by inaccurate information.

Doctors don’t make money from selling vaccines.

Read more…

Parents Play Key Role as Local & National Vaccine Advocates

April 28, 2016 1 comment

Parents who have watched their child suffer from a vaccine preventable disease can often feel blindsided.  Prior to their own personal experiences they’re usually unfamiliar with the dangers of these diseases.  Sometimes they don’t realize that these diseases are a threat or that they continue to infect people around the country and the world. In cases of influenza and pertussis, we often see children who were unvaccinated because they were too young to start receiving these vaccines.  In other cases, like those involving meningococcal serogroup B, parents were simply not aware of the need for, or the availability of, a certain vaccine. There are even times when parents who have lost a child to a vaccine preventable disease are surprised to learn that some people choose not to vaccinate, and in doing so contribute to disease outbreaks that put others at increased risk.

In the 25 years that Every Child By Two has spent trying to protect families from vaccine-preventable diseases, they’ve had the distinct honor of working with many parents who’ve lost a child to a preventable disease.  These Parent Advocates want to prevent such a tragedy from happening again and in working with organizations like Every Child By Two, they’re able to use their personal stories to help educate the public about the need for vaccines.

Katie and Craig Van Tornhout are two such people who have turned a tragedy into a personal mission.

CallieCaresProfilePicAfter five years and four miscarriages this young couple believed their prayers had been answered when they finally welcomed their precious daughter Callie into their lives. However, their joy quickly turned to sorrow on January 30, 2010, when Callie died of pertussis at only five weeks of age.

Callie was too young to have started her infant DTaP vaccination series, which begins at 2 months of age and helps protect against tetanus, diphtheria and pertussis.  In the months that followed Callie’s death, the Van Tornhout’s learned a lot about the dangers of pertussis and the importance of adult Tdap vaccine.  They learned that pertussis is especially deadly to infants and that
most infants who contract pertussis are typically VYF_FB01exposed by an adult whose own pertussis immunity may have waned from the vaccine they received as a child.  And they learned that Callie contracted pertussis in the very hospital she was born in.

In an effort to prevent other children from suffering the way Callie had, the Van Tornhout’s are now helping to educate others about the risk of pertussis.  They not only encourage other parents to fully vaccinate their children, but they stress the importance of adult Tdap boosters, which are especially important for expectant mothers as well as the close family members and caregivers of young babies.

Over the past six years they have channeled their grief into something positive.

Read more…

Five Ways to #BeLikeBen and Stand Up For Public Health

February 18, 2016 5 comments

got_public_healthLast month marked the 310th birthday of Dr. Benjamin Franklin.  While Dr. Franklin is well-known for his historic role as a founding father and diplomat, he was also an accomplished author, politician, scientist, inventor, and health care visionary who created a lasting legacy to American medicine and public health.  His civic involvement included the creation of the first public hospital and his avid support for smallpox inoculation.

Each year, an individual who exhibits significant accomplishments in a field of Franklin’s interest is presented with the Benjamin Franklin Founders Award.  This year, the chosen field of interest was public health and the honored recipient was none other than Every Child By Two Board Member, Dr. Paul A. Offit.

While Dr. Offit is clearly well deserving of this award, I believe he received this honor for more than just the obvious reasons.

pauloffitYes, Dr. Offit has a long list of significant professional accomplishments, to include the Director of the Vaccine Education Center at the Children’s Hospital of Philadelphia, a  Maurice R. Hilleman Professor of Vaccinology and a Professor of Pediatrics at the Perelman School of Medicine at the University of Pennsylvania. He’s the co-inventor of the rotavirus that has the potential to save millions of lives around the world, and he gives generously of his time to speak and write about vaccines and vaccine safety.  Frankly, he’s received more awards than I have time to write about, but that is not what I believe makes him so worthy of the Benjamin Franklin Founders Award.

He is most deserving of this award due to the many small, but significant ways in which he advocates for safe and healthy communities.  

Dr. Offit is not only one of the coolest scientist I know, but he has also been an enormous help to me and many other parents who are interested in learning more about the science and sensibility of immunizations.  His commitment to educate others on the need, benefit and importance of safe and effective immunizations goes well beyond what could be expected of such an accomplished scientist. In the six years since I’ve met Dr. Offit, there have been dozens of times when he has agreed to talk one-on-one with a parent who is confused and concerned about vaccinating their children. While I can’t imagine that he has the time, he always makes the time.  Not only has he helped countless people understand the complexities of immunology, what he teaches others sends ripples of knowledge out into the public health community.

Dr. Offit reflects Dr. Franklin’s commitment to the improvement of civic life, both as an extraordinary scientist, and as tireless public health advocate, but also in his commitment to make our community a safer place for us all.

Today, I would like to respond to a request by the Vaccine Education Center, and ask us all to consider how we can #BeLikeBen.  But not by becoming some big-time inventor or accomplished scientist.  But rather, in finding ways to be a positive influence to the public health of our communities. 

You don’t have to be employed in public health to be a public health advocate.  

By suggesting vaccine recommendations in your casual conversations, you can help give people the information they need to make informed decisions. Of course, no one wants to be that person who only talks about one thing, even if it’s something as important as vaccines.  But I’ve come to recognize that I have plenty of opportunities to discuss immunizations in ways that are entirely appropriate in my everyday conversations with others.

Here are 5 simple things you can do to support public health and immunizations:

1.) With Your Comments and Posts On Social Media

jyTzFXoGSocial media is a place where we can share the important (and sometimes not-so-important) things that go on in our lives.  It’s also a place where relationships are nurtured and important conversations can influence others.

When a friend talks about preparing their kid for college, show how much you care by making sure they are informed about the dangers of meningococcal disease and the importance of vaccines for young adults.  When people are discussing the health of their elderly parents, be sure they know that shingles, pneumococcal and influenza vaccines can help protect them preventable illnesses.  When someone announces that they are expecting, congratulate them and then help educate them about the Tdap and flu vaccine recommendations for pregnant women.

Of course, sharing posts from the Vaccinate Your Family Facebook page will also help raise awareness about disease outbreaks, immunization policy changes and vaccine safety studies. Correcting vaccine misinformation you see on other people’s posts is another important way to help ensure vaccine confidence among your contacts.

2.) With Your Family At Holiday Functions

When my expectant cousin mentioned she wouldn’t be attending a family wedding because she was hesitant to travel with her newborn, she opened the door for an important health discussion.  I explained how the flu and Tdap vaccines during pregnancy could help protect her and her newborn baby, and she was open to my suggestion that her husband, parents and others with close contact with her baby, be vaccinated in the weeks before she was due.  When her mother insisted that she wouldn’t need any shots because she had been vaccinated as a child, I explained how immunity wanes and how an adult Tdap booster would be the best protection.  By the end of the night, every family member knew that their vaccination status was critical in helping to protect her baby and every other baby they came in contact with.

3.) With Your Friends While Out to Dinner

While enjoying dinner with friends one night, the conversation turned to our children and their summer activities.  One couple mentioned that their daughter was attending science camp and learning about infectious diseases.  The conversation continued and I soon learned that one of the men had suffered with meningitis as a teenager, one of the women had a bone marrow transplant that prevented her from being vaccinated, and another couple was hesitant about the need for boys to get the HPV vaccine.  When I mentioned that HPV-related throat and penile cancers could be transmitted to men in ways that they hadn’t thought of, they began asking questions.  By the end of the night, parents were planning meningitis boosters for their college-bound kids and asking if it was too late to get the HPV vaccine series for their sons.

4.) With Your Neighbors At the Bus Stop

When a neighbor was complaining about her son’s asthma, I asked if he received a seasonal flu vaccine.  Although his doctor recommended it, she explained that her husband didn’t trust government agencies that seemed to push the vaccine year after year, so they never got him vaccinated.  After sharing statistics on the dangers of the flu and referring her to an abundance of scientific research on flu vaccine safety, she revisited her decision to get her son and all other family members vaccinated.

5.) With Your Vote On Election Day

In the upcoming elections, it’s important to consider  supporting candidates at the local, state and national level who will stand up for public health issues.  Many states are considering legislation that will help reduce the number of non-medical exemptions to school required vaccines.  In order to get such bills passed at the state level, we need public servants who understand that every student in entitled to an education in a safe environment that is free from preventable diseases.

317 CoalitionOn the federal level, we need a Congress that will support the 317 Coalition, which advocates for federal appropriations to support our nation’s immunization infrastructure by adequately funding vaccine activities at the national, state and local levels.  We also need a Congress that will commit the funds necessary to maintain much needed public health programs in our own country and abroad.  After all, last year’s outbreaks of measles and Ebola have demonstrated how our nations’ public health is inevitably tied to various global health challenges and initiatives around the world.

We hope that the public service of both Dr. Franklin and Dr. Offit will inspire us all to #BeLikeBen and help make our communities a safer place for us all.  I think you will find that sharing immunization information in everyday conversations is not as hard as you may think. 

Please comment below to let us know how you are making an effort to #BeLikeBen day after day, with public health contributions that are big or small.  And join us in using the hashtag #BeLikeBen on social media to share your ideas and contributions.